ABUJA, Nigeria – The Haemophilia Foundation of Nigeria (HFN)on Thursday launches a nationwide initiative aimed at identifying thousands of Nigerians living with undiagnosed bleeding disorders.
The programme, titled “Road to Clot: Reaching the Undiagnosed,” brings basic screening services directly into communities through mobile testing units and outreach centres.
HFN Executive Director Megan Adediran says bleeding disorders remain largely invisible in Nigeria, not because they are rare, but due to poor awareness and limited diagnostic access.
“Based on global prevalence, Nigeria should have tens of thousands of people living with haemophilia, yet only 941 are registered,” she says.
She explains that the gap leaves many individuals suffering unexplained bleeding, repeated hospital visits, disability and avoidable deaths.
“The goal is simple: identify people early and reduce years of suffering,” Adediran says.
She adds that each identified case strengthens Nigeria’s bleeding disorders registry, improving planning and advocacy.
“Without data, bleeding disorders remain invisible. With data, they become impossible to ignore,” she says.
While acknowledging support from the World Federation of Hemophilia Humanitarian Aid Programme, Adediran urges stronger government backing, warning that early diagnosis is key to saving lives.
